By Jennifer Swift – The New Haven Register [email protected] / Twitter: @nhrswift BRANFORD — What if there was a test to tell parents their son had a life-threatening illness? What if there was a cure to stop that debilitating illness? For a disease known as adrenoleukodystrophy, both exist, though little boys are still dying from …Read More
Can you help us? Senate Bill 465, an Act Requiring Newborn Screening for Adrenoleukodystrophy has referred to the Public Health Committee with a public hearing scheduled for Wednesday, February 27, 2013. Email our State Representative to let them know you support passage.