Support Newborn Screening

Newborn screening for ALD is a very important part of our effort to get children diagnosed early on; this will ensure that they will be on track to lead the best quality of life possible. Early detection is vital.

State Legislation Status of Newborn Screening for ALD

51% of all US newborns are now screened for ALD. That’s approximately 2,050,000/year!

Together We Can #SaveTheBoys

Let’s tell them all our boys should have a fighting chance right from the start. Nationwide adoption of newborn screening can help stop the progression of ALD. As depicted on the map, legislation concerning early ALD screening has been enacted and implemented in Connecticut, California, Florida, Kentucky, Minnesota, Nebraska, New York, Pennsylvania, Tennessee, and Washington. It has also been enacted but is awaiting implementation in New Jersey, Ohio, Michigan, and Utah. Active efforts to enact legislation are now underway in Arizona, Colorado, Georgia, Iowa, Illinois, Louisiana, Maryland, Massachusetts, New Mexico, North Carolina, Texas, Virginia, and West Virginia. Newborn screening is completed by pricking a baby’s heel and extracting a few drops of blood. Blood tests do not diagnose, but rather identify which babies require additional testing. Early identification gives doctors additional valuable time to treat otherwise difficult diseases.