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Additional Resources

Many groups are equally committed to aiding the fight against ALD. Visit our sister organizations for more resources and information about the disease and how to aid our efforts.

  • ALD Connect
  • ALD-AMN Global Alliance
  • bluebird bio
  • The Aidan Jack Seeger Foundation
  • The Myelin Project
  • Stop ALD

In the News…

  • Pushing for ALD Newborn Screening March 1, 2013
  • Sen. Fasano Introduces Bipartisan Bill Seeking Newborn Screening for Life Threatening Disorder February 27, 2013
  • Gov. Malloy Signs Legislation to Improve Connecticut Newborn Health Screening Process August 23, 2013
  • Branford Advocates Fight for Screening of Rare Disease ALD March 30, 2014

Downloads

  • Red Flag for ALD
  • Newborn Screening: Four Facts Policymakers Need to Know (Association of Public Health Laboratories)

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