Brian’s Hope is proud to share that bluebird bio in Cambridge, MA has announced that interim data for the treatment of cerebral adrenoleukodystrophy (CALD) will be presented during the Clinical Trials at the American Academy of Neurology (AAN) 2016 Annual Meeting on April 20, 2016. Read the complete press release!
Can you help us? Senate Bill 465, an Act Requiring Newborn Screening for Adrenoleukodystrophy has referred to the Public Health Committee with a public hearing scheduled for Wednesday, February 27, 2013. Email our State Representative to let them know you support passage.