Can you help us? Senate Bill 465, an Act Requiring Newborn Screening for Adrenoleukodystrophy has referred to the Public Health Committee with a public hearing scheduled for Wednesday, February 27, 2013. Email our State Representative to let them know you support passage.
Rare Disease Day
Brian, and his mom Jean, are busy preparing for giving testimony at Legislative Office Building on February 27, then heading to Rare Disease Day event February 28 to speak about adrenoleukodystrophy (ALD). ALD is one of 6,000 rare diseases recognized on Rare Disease Day, occurring worldwide.
Newborn Screening
This year, the nation celebrates 50 years of Newborn Screening. A goal of Brian’s Hope is that the test for ALD will be added to the existing panel of the newborn screening tests, given to newborns here in CT. We are working with our legislators to make this happen. Our bill is Senate Bill 465, …Read More
A Huge Thank You
A huge Thank You from our family to those who rallied likes for our Page and our Cause. And a Thank You and welcome to our new “Fans”. We are working towards the day when no child will experience the devastation of adrenoleukodystrophy (ALD).
Thank You for the Support!
We are looking forward to 500 likes! We want to thank you for your support and good wishes as Jean and Brian visited the Legislative Office Building last week. Please, share our this page and story with your family and friends, as we are looking to double our likes in two weeks, ahead of our …Read More
- « Previous Page
- 1
- …
- 4
- 5
- 6
- 7
- Next Page »
