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Rare Disease Day

February 22, 2013 by Brian's Hope

rarediseaseday

Brian, and his mom Jean, are busy preparing for giving testimony at Legislative Office Building on February 27, then heading to Rare Disease Day event February 28 to speak about adrenoleukodystrophy (ALD). ALD is one of 6,000 rare diseases recognized on Rare Disease Day, occurring worldwide.

Filed Under: Brian's Hope News, Progress of Newborn Screening

Updates

Latest News on ALD

Recent Posts

  • FDA Grants Breakthrough Therapy Designation to Lenti-D™ for the Treatment of Cerebral Adrenoleukodystrophy May 24, 2018
  • California Begins Newborn Screening for ALD October 3, 2016
  • 20th Annual Hammerfest was an Amazing Success October 3, 2016
  • Press Conference on ALD Newborn Screening Success Held in Connecticut September 2, 2016

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