We did it! Our bill to provide testing of newborns for ALD has been signed into law by Governor Dannel Malloy! Brian’s Hope will be working with the state Department of Public Health in the coming months to see how the new law can best be implemented so this insidious disease is detected early in …Read More
17th Annual Hammerfest Triathlon and Fun Run
It’s that time again! The 17th Annual Hammerfest Triathlon and Fun Run to benefit Brian’s Hope will take place Sunday, September 15th, 2013 at the Owenego Inn on Linden Avenue in Branford. Register online at Active.com or download the application(s) below, which include directions on registration, pricing and where to send your check. Below is …Read More
Brian’s Beachside Boogie Duathlon
Presented by Race Productions, LLC to benefit Brian’s Hope! Sunday, April 14 Hammonsasset State Park Madison, CT Race Start Time: 9:00 AM Distances: 2 mile run, 10 mile bike, 2 mile run Click here to register online!
Senate Bill 465: An Act Requiring Newborn Screening For Adrenoleukodystrophy Passed through the Public Health Committee Monday, March 11
By Lisa Reisman – The Shoreline Times Published: Tuesday, March 12, 2013 On a crisp early-March Sunday afternoon, a small bipartisan group of state lawmakers came together. Not to grab at each other’s lapels meting out compromise deals in a shadowy cloakroom, but amicably, in the soft-lit Branford living room of Brian Kelley. One pressing …Read More
We Celebrate the 1-Year Anniversary of Aidan’s Law
Thanks to Elisa Seeger (pictured), it has been 1 year since New York State passed ‘Aidans Law’ to screen all newborns for ALD. After her own son passed away from the disease, Seeger has showed extreme passion to save lives and has pushed to have the law enacted nationwide. Since the law has been passed …Read More
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