We’re honored to work with great organizations such as Lorenzo’s Oil to fight to bring an end to ALD. Even though Lorenzo Odone couldn’t be saved, we hope our efforts continue to help #SaveTheBoys.
Sylvia Burwell, the Health and Human Services Secretary, has recommended that every state begin screening newborns for ALD. Currently, New York and Connecticut are the only states who have implemented testing for ALD in newborns. By screening newborns, the disease can quickly be identified and treatment can begin immediately.