GREAT NEWS!!! We made a trip to Hartford today and met with Senator Terry Gerratana and Representative Susan Johnson, the co-chairs of the Public Health Committee in Hartford to introduce the newborn screening for adrenoleukodystrophy (ALD). We are hoping it will be added to the existing newborn screening panel in CT, a life-saving opportunity. We also spoke with Senator Fasano. We are truly grateful for their support! We hope that you all can reach out to your own senators and representatives in the future as we keep you all up to date! Thanks for everyone’s support!
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