Many families affected by ALD came out on February 27th in support of Senate Bill 465, which would make testing for the devastating disease standard for all newborns.
Here, Jean and Brian are joined by Lee Giordano and her 13 year old son, Stevie, and Eliza Florian, who holds a photo of her precious son, Joshua, who passed away from ALD at the age of 2. Amber Saltzman is also pictured; her son was saved by a bone marrow transplant at a young age and is now a thriving 8th grader on the swim team.
