Support Newborn Screening
Newborn screening for ALD is a very important part of our effort to get children diagnosed early on; this will ensure that they will be on track to lead the best quality of life possible. Early detection is vital.
State Legislation Status of Newborn Screening for ALD
Together We Can #SaveTheBoys
Let’s tell them all our boys should have a fighting chance right from the start.
It is our goal to have newborn screening become a nationwide process. As seen on the map, legislation concerning early ALD screening has been implemented in New York and Connecticut, and has been passed in New Jersey, Minnesota, Tennessee, Washington, Texas, Illinois, Michigan, Massachusetts, Florida and California.
Moreover, legislation is currently pending in states like Maryland. Active endeavors to pass legislation are now underway in Colorado, North Carolina, Louisiana, West Virginia, Pennsylvania and Rhode Island.
Newborn screening is completed by pricking a baby’s heel and extracting a few drops of blood. These blood tests do not diagnose, but rather identify which babies require additional testing. This early identification can give doctors time to treat otherwise difficult diseases.