California Begins Newborn Screening for ALD It’s official, California is testing their babies for ALD, at the rate of 1,400 births per day! In addition to this screening, they will also retroactively screen blood samples from newborns born on or after February of this year. This is a huge milestone for the ALD community, and the California Department of …Read More
Hammerfest 2016 was a great success, with beautiful weather and smiles all around! We celebrated 20 years of great races for great causes, The Myelin Project and Brian's Hope, both in support of the ALD community. We want to extend a heartfelt thank you to our hosts at the Owenego, the triathletes, our steadfast volunteers, …Read More
Check out the article featured in the New Haven Register about the press conference announcement and the journey it has taken to achieve this accomplishment. We are so blessed to have the support of our local community behind us! Click here to read the article.
We’re honored to work with great organizations such as Lorenzo’s Oil to fight to bring an end to ALD. Even though Lorenzo Odone couldn’t be saved, we hope our efforts continue to help #SaveTheBoys. Sylvia Burwell, the Health and Human Services Secretary, has recommended that every state begin screening newborns for ALD. Currently, New York …Read More
Brian’s Hope is proud to share that bluebird bio in Cambridge, MA has announced that interim data for the treatment of cerebral adrenoleukodystrophy (CALD) will be presented during the Clinical Trials at the American Academy of Neurology (AAN) 2016 Annual Meeting on April 20, 2016. Read the complete press release!